Pseudotumor Cerebri

Has any one here ever heard of Pseudotumor Cerebri?

Does anyone have it

I had to do some internet research. but it doesn't sound like fun. apparently the afflicted person has symptoms like those of a person with a brain tumor ... but there is no tumor. they believe it is caused by excessive intercranial pressure. here is an excerpt for possible treatment .....

How to Treat Pseudotumor Cerebri
This condition is treated with medications (in most cases). Obese individuals, who have pseudotumor cerebri, are strongly advised to lose weight. In patients who have problems with vision, surgery can be done to reduce the pressure.

• Glaucoma medications can be part of the treatment. These medications reduce the cerebrospinal fluid production.

• Migraine medications can help you relieve the headache caused by pseudotumor cerebri.

• Diuretics can be used to reduce fluid retention and prevent swelling.

Pseudotumor Cerebri Surgery
• Spinal fluid shunt: a thin tube is inserted into the brain to drain away cerebrospinal fluid; the tubing goes to the abdomen, and that is where the shunt discharges the cerebrospinal fluid.

• Optic nerve sheath fenestration is another method, but it is not always successful. Sometimes, it can make vision problems worse.

I hope you don't have this condition.

Thank you for your reply NJH... Unfortunately my daughter was just diagnosed with it. I was wondering if anyone here had it or knew someone that did. I gather from all that I've read since her diagnosis that it is pretty rare (about 1 in 100,000) She has had a headache for months already... now she has severe backpain & spasms from the lumbar puncture that they did. I hate to see my daughter in such pain & she is afraid because she has already lost some of her eye sight & there is no guarentee it will come back. She has been enrolled in a study at a hospital near us, but I'm worried she may get the placebo & not the medication she needs. All prayers for her would be greatly appreciated

So sorry to read about ur daughter~it never ceases to amaze me the things that can go wrong with the human body. I certainly do pray that all goes well for her with her care and treatment. Blessings upon you both~~ Annie

Very sorry about your situation.
DO NOT UNDERESTIMATE THE POWER OF PRAYER!

Sometimes prayer, and faith, is all we have ..... But, MY Jesus, and YOURS, is bigger than any problem.
I have been in impossible situations and placed my life in God's hands .... great things happen!

the most important thing is that we don't give up! and that we are there for our loved ones. I will keep you and your daughter in my prayers.

And i will do a bit more research.

Susweka & notjusthank... I want to thank you both. I do believe in the power of prayer & it means a lot to know that you are praying with me for my daughter
Bless you both

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